Striving for a normal life ... Tripp Miller is far below the weight charts now, but faces a life of never having the sensation of being full. Hunger, a slow metabolism and the potential of life-threatening obesity will be his constant enemies. Family and friends will be his constant allies.
Tripp Raymond, son of Scott and Beth (Tysdal) Miller of Wall, was born by cesarean section on August 4, 2008. Symptoms resembling premature birth, especially pulmonary hypertension heart problems and not crying when he was hungry and not wanting to eat, lead to a final diagnosis of Prader-Willi Syndrome (PWS).
PWS is an extremely rare genetic condition. In infancy, it is characterized by weak muscle tone, feeding difficulties, poor growth and delayed development. Beginning in childhood, individuals develop an insatiable appetite and chronic overeating, resulting in obesity.